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Jul 9, 2025 · This study examines the unmet social needs of cancer patients living in a disadvantaged Australian region, revealing that 72% experienced at least one unmet need. This …
From driving patient-centricity to mapping the patient journey, identifying unmet needs, and guiding drug development and product positioning, social data insights can fill in the real-world gaps …
May 23, 2024 · An emerging body of research is leveraging social media posts and other online content to glean unique insights about people with rare diseases.
In order to fill this knowledge gap, we conducted a series of in-depth, qualitative interviews with patients and their guardians who were being seen in the clinic for rare genetic disorders.
May 1, 2025 · Identification of cancer patients’ unmet health-related social needs (HRSNs) is key to overcoming barriers, ultimately improving well-being and health outcomes in oncologic care.
This study highlights the multifaceted need criteria to evaluate unmet health-related needs of persons living with rare diseases and their caregivers, emphasizing that these needs extend …
Families with rare diseases (RDs) have unmet needs that are often overlooked by health professionals. Describing these needs and the impact of the disease could improve their medical …
Feb 22, 2023 · In this article, we consider how social media insights can provide answers to unique challenges posed by rare diseases and optimise outcomes for patients.
Jul 1, 2025 · This study highlights the multifaceted need criteria to evaluate unmet health-related needs of persons living with rare diseases and their caregivers, emphasizing that these needs …
Feb 18, 2025 · For patients who live with rare diseases, making new friends – especially other patients – can lift, nourish and inspire. We humans are biologically wired to want social …
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